Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research

Author(s): Sprangers, M. A. G.

Journal/Book: Soc Sci Med. 1999; 48: the Boulevard Langford Lane, Kidlington, Oxford Ox5 1GB, England. Pergamon-Elsevier Science Ltd. 1531-1548.

Abstract: The impact of health state changes on an individual's quality of life (QOL) has gained increased attention in social and medical clinical research. An emerging construct of relevance to this line of investigation is response shift phenomenon. This construct refers to the changes in internal standards, in values, or in the conceptualization of QOL which are catalyzed by health stale changes. In an effort to stimulate research on response shift, we present methodological considerations and promising assessment approaches for measuring it in observational and interventional clinical research. We describe and evaluate individualized methods, preference-based methods, successive comparison methods, design approaches, statistical approaches and qualitative approaches. The hierarchical structure of the construct is also discussed, with particular emphasis on how it might be elucidated by empirical assessment which uses the proposed methods and approaches. It is also recommended that criterion measures of change be included in future studies of response shift.

Note: Article Schwartz CE, Frontier Sci & Technol Res Fdn Inc, 1244 Boylston St, Suite 303, Chestnut Hill,MA 02467 USA

Keyword(s): response shift; methods; assessment; self-report change; quality of life; GROWTH CURVE APPROACH; RETROSPECTIVE PRETEST; GAMMA-CHANGE; CONGRUENCE COEFFICIENTS; PATIENT SATISFACTION; CLINICAL-TRIALS; PERSONAL GOALS; BETA-CHANGE; MODELS; PROGRAM

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