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November 2021

Genetic medicine: an experiment in community-expert interaction

Author(s): Barns, I., Shaw, R., Davison, A.

Journal/Book: J Med Ethics. 1999; 25: Tavistock House East, Tavistock Square, London, England WC1H 9Jr. Prof Sci Publ. 335-339.

Abstract: This project tested a two-way model of communication between lay groups and experts about genetic medicine in Perth, Western Australia. Focus group discussion with community group participants was followed by a communication workshop between community group participants and experts. Four groups of concerns or themes emerged from discussion: clinical considerations; legislative concerns; research priorities, and ethical and wider considerations. Community group concerns are not always met by the actions of ''experts''. This is, in part, because of the differing life-worlds of each group. However, the communication workshop showed the potential of two-way communication for both lay and expert members in understanding the others' viewpoint. Further, the approach developed here offers one possible way for community groups to participate in a substantial way in policy formulation processes.

Note: Article Schibeci R, Murdoch Univ, Murdoch, WA 6150, AUSTRALIA

Keyword(s): genetic medicine; gene technology; public understanding; public policy; health communication

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