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October 2021

Quality of life in hospice patients - A pilot study

Author(s): Rummans, T., Sloan, J., Kaur, J., Bartlett, A., Borkenhagen, L., Loprinzi, C.

Journal/Book: Psychosomatics. 1999; 40: 1400 K St N W, Ste 1101, Washington, DC 20005, USA. Amer Psychiatric Press, Inc. 309-313.

Abstract: The general public and the medical community often perceive dying patients' quality of life (QOL) as rapidly deteriorating before death. However with appropriate palliative services, this effect may be positively modified. Objective data are lacking on the tote experience of dying from the point of view of the patient that this pilot study. Begins to address. Patient caregivers, and staff in our hospice program completed questionnaires evaluating the patient's QOL every 2 weeks until the patient's death. This pilot study found that patients' QOL was relatively high and stable over time. Primary caregivers rated the patient's QOL lower than patient self-ratings, whereas the hospice staff evaluated the patient's QOL similarly to the patient. Many dying patients suffer and are perceived as having no QOL in the final days by their caregivers. This perception may be modified to maintain one's QOL with the help of palliative medical services, thereby relieving the suffering of those who are actively, facing death.

Note: Article Rummans T, Mayo Clin, Dept Psychiat, 200 1st St SW, Desk W 11A, Rochester,MN 55905 USA


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