Palliative care at home: Reflections on HIV/AIDS family caregiving experiences

Author(s): Davies, B.

Journal/Book: J Palliative Care. 1998; 14: 110 Pine Ave W, Montreal Pq H2W 1R7, Canada. Center Bioethics Clin Res Inst Montreal. 14-22.

Abstract: This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.

Note: Article Stajduhar KI, Univ British Columbia, Sch Nursing, T-201-2211 Wesbrook Mall, Vancouver, BC V6T 2B5, CANADA

Keyword(s): SOCIAL SUPPORT; GAY MEN; AIDS; HEALTH; DEMENTIA; PARTNERS; PARENT; STRESS

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