Participatory action research: Reflections on critical incidents in a PAR project

Author(s): Singer, G. H. S., DiVenere, N., Ginsberg, C., Powers, L. E.

Journal/Book: J Assn Pers Severe Handicap. 1998; 23: 29 W Susquehanna Ave, Ste 210, Baltimore, MD 21204-5201. Assn Pers Severe Handicap. 211-222.

Abstract: This article describes a participatory action research (PAR) project designed to evaluate Parent to Parent programs in five states in the United States. The PAR team consisted of two groups: 1) parent lenders of programs that create one-to-one matches between help-seeking parents of children with disabilities and volunteer supporting parents and 2) university-based researchers. Based on a narrative record of the project, critical incidents are presented along with reflections of factors that contributed to the success of the project overall. The project successfully gathered evaluative data about Parent to Parent self-help programs. Results of both the PAR project and the study it created are presented. A process of developing a shared understanding of the programs and of the purposes for evaluating them, along with an on-going willingness of parents and researchers to compromise, led to creative solutions to difficulties that arose in meeting the needs of researchers and parents. As a result of the project, published data front a controlled experimental study are now available showing that Parent to Parent assisted parents in developing more positive views of their circumstances and a stronger sense of efficacy, in coping with family and child challenges. Interviews indicated some of the reasons why Parent to Parent succeeds and fails. The study also revealed operational problems in the programs that were previously unrecognized. As a result of the project, the participating programs have inane several changes to improve their services and they have begun to use the research data to support their legitimacy to funders and to expand their services to new populations.

Note: Article Santelli B, Univ Kansas, Beach Ctr Families & Disabil, 3111 Haworth Hall, Lawrence,KS 66045 USA

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