A model of consumer participation: The Canadian breast cancer initiative

Author(s): Stachenko, S., Inhaber, S.

Journal/Book: Can J Aging Rev Can Vieilliss. 1997; 16: Univ Guelp, RM 039, Mac Kinnon Building, Guelph on N1G 2WL, Canada. Canadian Journal Aging. 177-186.

Abstract: The issue of linking research and policy is not unique to health care of the elderly; it has been articulated by numerous stakeholder groups, including those with specific diseases, such as breast cancer. A method of enhancing these links is now being systematically addressed in the Canadian Breast Cancer Initiative with the input of women with breast cancer. The Initiative consists of a number of components and demonstrates a model of consumer participation at multiple levels in setting the agenda for research and policy development, thus enhancing accountability in the transfer of research findings into policy. The concept of consumer participation in linking research and policy is transferable to other diseases and other population groups, such as seniors.

Note: Article Parboosingh J, Hlth Canada, Dis Prevent Div, Jeanne Mance Bldg, Tunneys Pasture, Postal Locator, Ottawa, ON K1A 1B4, CANADA

Keyword(s): breast cancer; consumerism; models; research; policy; PREFERENCES; FRAMEWORK

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