The construction of lay expertise: AIDS activism and the forging of credibility in the reform of clinical trials

Journal/Book: Sci Technol Hum Val. 1995; 20: 2455 Teller Rd, Thousand Oaks, CA 91320. Sage Publ Inc. 408-437.

Abstract: In an unusual instance of lay participation in biomedical research, U.S. AIDS treatment activists have constituted themselves as credible participants in the process of knowledge construction, thereby bringing about changes in the epistemic practices of biomedical research. This article examines the mechanisms or tactics by which these lay activists have constructed their credibility in the eyes of AIDS researchers and government officials. It considers the implications of such interventions for the conduct of medical research; examines some of the ironies, tensions and limitations in the process; and argues for the importance of studying social movements that engage with expert knowledge.

Note: Article S Epstein, Univ Calif San Diego, San Diego, CA 92103 USA

Keyword(s): SOCIAL-MOVEMENTS; SCIENCE; POLITICS; MOBILIZATION; KNOWLEDGE; IDENTITY; DISEASE; REASON; DRUGS; HIV

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