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May 2024

'Losing the plot'? Medical and activist discourses of contemporary genetics and disability

Journal/Book: Sociol Health Ill. 1999; 21: 108 Cowley Rd, Oxford Ox4 1Jf, Oxon, England. Blackwell Publ Ltd. 669-688.

Abstract: This paper highlights the absence of disability perspectives from research on the cultural construction of genetics. Specifically, it contrasts the discourse on disability emanating from the medical establishment, with the discourse on genetics emanating from the civil rights movement of disabled people. The rhetorical strategies of both positions are criticised, and greater communication and dialogue between different stakeholders in genetics is advocated.

Note: Article Shakespeare T, Univ Leeds, Disabil Res Unit, Leeds LS2 9JT, W Yorkshire, ENGLAND

Keyword(s): disability; eugenics; cultural representation; genetic screening; DOWNS-SYNDROME; EUGENICS; DIAGNOSIS; CHOICES; ISSUES


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