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May 2024

A longitudinal analysis of family needs following traumatic brain injury

Author(s): Sander, A. M., Kreutzer, J. S.

Journal/Book: Neurorehabilitation. 1996; 7: Customer Relations Manager, Bay 15, Shannon Industrial, Estate Co, Clare, Ireland. Elsevier Sci Ireland Ltd. 175-187.

Abstract: The present investigation assessed 38 family members' perceptions of unmet, partly met and met needs following the brain injury of a relative. Follow-up data was collected at two time intervals averaging 6 and 24 months post-injury. There was no significant difference between the proportion of needs rated as important or very important at time I or II. Highly ranked needs included requests for information, clear and honest explanations from professionals, reassurance, respite care, educational and social activities for the patient, emotional support, financial counseling, and advice about community resources. Relatives rated nearly half of the 40 needs as not met at either time. A significant difference was noted in the proportion of unmet/partly met needs within each factor scale at time I and II. A larger number of Emotional Support and Involvement with Care needs were reported as not met at time II. Needs for Professional Support were more frequently reported as met at time II. For both time periods, Health information needs were generally perceived as met while needs relating to Instrumental Support were largely unmet. The findings are discussed in light of implications for treatment and long term adjustment to injury related changes.

Note: Article AD Witol, Virginia Commonwealth, Univ Med Coll Virginia, Dept Phys Med & Rehabil, MCV Box 980542, Richmond, VA 23298 USA

Keyword(s): family needs; traumatic brain injury; CRITICALLY ILL PATIENTS; HEAD-INJURY; RELATIVES


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